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Apologies for reaching out through this comment box, but I couldn’t find a better way to contact you directly. Wanted to invite you to share this news with your readers — thought it might be of interest to those affected by sickle cell disease:
Sickle cell disease patients and those who stand with them are invited to pre-register for free access to oneSCDvoice.com, an empowering online community launching later this month (December).
Promoted as “A Sickle Cell Community Tailored to You,” oneSCDvoice will deliver trustworthy information to help people affected by sickle cell disease know more about it, learn of promising new treatments being tested in clinical trials (and how to access those new treatments as a clinical trial participant), more easily tap into needed support, and above all improve the quality of their lives.
oneSCDvoice.com is the creation of sickle cell healthcare providers, advocacy leaders, pharmaceutical manufacturer Pfizer, Inc. and health technology company rareLife solutions.
This collaborative digital education platform provides professionally vetted links to credible information about SCD, about lifestyle issues related to the disease, and about how to get more and better help coping with this devastating genetic condition.
Read full details at: http://www.prweb.com/releases/2017/11/prweb14939636.htm
Hi Rich,
Sorry for the delay in responding. This is wonderful news and information. I will share on another website and blog as well for those affected by sickle cell. Thank you very much!