Sickle cell disease patients and those who stand with them are invited to pre-register for free access to oneSCDvoice.com, an empowering online community launching later this month (December).
Promoted as “A Sickle Cell Community Tailored to You,” oneSCDvoice will deliver trustworthy information to help people affected by sickle cell disease know more about it, learn of promising new treatments being tested in clinical trials (and how to access those new treatments as a clinical trial participant), more easily tap into needed support, and above all improve the quality of their lives.
oneSCDvoice.com is the creation of sickle cell healthcare providers, advocacy leaders, pharmaceutical manufacturer Pfizer, Inc. and health technology company rareLife solutions.
This collaborative digital education platform provides professionally vetted links to credible information about SCD, about lifestyle issues related to the disease, and about how to get more and better help coping with this devastating genetic condition.
First in Human is a documentary capturing the real-life experiences of doctors, researchers, staff, patients and their caregivers, at the National Institutes of Health Clinical Center. For over a year, Discovery, in collaboration with John Hoffman ("Weight of the Nation," "Sleepless in America"), was embedded in the Clinical Center to capture the challenges faced in diagnosing and treating diseases.
Narrated by Jim Parsons ("The Big Bang Theory," "Hidden Figures"), the three-episode series showcases the innovative work that takes place within NIH’s Building 10 and provides an in-depth look at the reality of experimental medicine in clinical trials.
First in Human airs its first episode in August 2017 on Discovery. View the NIH News Release. View the NIH Director's Blog.
Join @Discovery, @NIHDirector, @NIHClinicalCntr, @NIH, @JohnHoffmanDocs and more on Aug. 9, 2017, from 1-2 pm ET for a tweet chat about the documentary and First in Human clinical trials. Follow the chat on
Twitter with #FirstinHuman.
All of the patients who come to the NIH Clinical Center participate in a clinical trial. Clinical trials look at new ways to prevent, detect, or treat disease. Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments. The goal of clinical trials is to determine if a new test or treatment works and is safe.
Patient Recruitment at the NIH Clinical Center
Call toll free: 1-866-999-5553 (TTY 1-866-411-1010)
Se habla espanol. Email email@example.com
Visit Search the Studies
Tank and the Bangas winner of the NPR Tiny Desk Concert.
I absolutely love this group. They combine hip-hop, poetry, funk and R&B sprinkled with lots of playful fun.
Tarriona Tank Ball (vocals); Jelly Joseph (vocals); Merell Burkett Jr. (keys); Norman Spence II (keys); Joshua Johnson (drums); Jonathan Johnson (bass); Albert Allenback (saxophone)
A new take on the old fashion Polaroid camera, the Impossible I-1 Analog Instant Camera is very cool and would make a great gift for the photographer in your family! For those of you who long for a bit of nostalgia in this digital age, it’s the perfect tech toy. Added features include remote control with an app from your phone and an advanced ring flash that adapts to your environment. The company claim is that the ring flash will capture your subject in the right light no matter where you shoot.
Impossible I-1 Analog Instant Camera
Dyer’s work bestrides cinema and gallery, time and technology, animation and animus, and effectively re-imagines animation through its long, lost past.
-Paul Wells, author, Re-imagining Animation: the Changing Face of the Moving Image
It’s World Sickle Cell Day, and we’re taking a look at the chronic pain and regular hospitalizations that are the reality for many suffering from sickle cell disease.
Nikki Peterson, like approximately 100,000 other Americans, was born with sickle cell anemia. The 43-year-old lives in Upper Marlboro, Md., and ends up in the hospital about four times during what she calls a good year.
Once a month, she undergoes a grueling process called hemapheresis. All of the blood is removed from her body, the platelets and plasma are separated out and returned to her, and then Peterson is given 8 to 12 units of packed red blood cells. This helps to mitigate the pain she lives with every day.
“I don’t know what it means to be without pain. I have nothing to compare it to,” Peterson tells The Root from her bed at Doctors Community Hospital in Greenbelt, Md. “I have what I call my normal pain, and my pain where I need to be in the hospital. They always ask what your pain scale is from 1 to 10. I function on a normal person’s 7 to 8. It’s like my 2.”
Muhammad Ali’s life and character were so rich, so multi-faceted, that the widespread mourning which greeted news of his passing Saturday reverberated far beyond sports fans, to history buffs, civil rights activists, Muslims, politicians, you name it. Film circles were no exception; he was always one of our most cinematic athletes, thanks to his movie-star…
via The Complicated Legacy of Muhammad Ali and ‘Rocky’ — Flavorwire
by Ryan Robinson
No matter how rewarding your full-time job may be, there’s one thing that’s even more meaningful than great pay and solid benefits: working for yourself.
Choosing the path of entrepreneurship is without a doubt riskier than being content with holding a 9-5 job, and requires way more sacrifice. However, once you’re reaping the lifestyle benefits of being your own boss and hustling your way into making significantly more money than you ever could at your day job, the hard work will have all been worth it.