Category Archives: Health

New Online Sickle Cell Community

Posted on December 21, 2017 | Comments Off

Sickle cell disease patients and those who stand with them are invited to pre-register for free access to oneSCDvoice.com, an empowering online community launching later this month (December).

Promoted as “A Sickle Cell Community Tailored to You,” oneSCDvoice will deliver trustworthy information to help people affected by sickle cell disease know more about it, learn of promising new treatments being tested in clinical trials (and how to access those new treatments as a clinical trial participant), more easily tap into needed support, and above all improve the quality of their lives.

oneSCDvoice.com is the creation of sickle cell healthcare providers, advocacy leaders, pharmaceutical manufacturer Pfizer, Inc. and health technology company rareLife solutions.

This collaborative digital education platform provides professionally vetted links to credible information about SCD, about lifestyle issues related to the disease, and about how to get more and better help coping with this devastating genetic condition.

http://www.prweb.com/releases/2017/11/prweb14939636.htm

https://www.onescdvoice.com/

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Posted in Health

Tagged Genetic disorder, oneSCDvoice, Sickle Cell, Sickle Cell Community

First In Human

Posted on August 10, 2017 | Comments Off

First in Human is a documentary capturing the real-life experiences of doctors, researchers, staff, patients and their caregivers, at the National Institutes of Health Clinical Center. For over a year, Discovery, in collaboration with John Hoffman ("Weight of the Nation," "Sleepless in America"), was embedded in the Clinical Center to capture the challenges faced in diagnosing and treating diseases.

Narrated by Jim Parsons ("The Big Bang Theory," "Hidden Figures"), the three-episode series showcases the innovative work that takes place within NIH’s Building 10 and provides an in-depth look at the reality of experimental medicine in clinical trials.
First in Human airs its first episode in August 2017 on Discovery. View the NIH News Release. View the NIH Director's Blog.

Join @Discovery, @NIHDirector, @NIHClinicalCntr, @NIH, @JohnHoffmanDocs and more on Aug. 9, 2017, from 1-2 pm ET for a tweet chat about the documentary and First in Human clinical trials. Follow the chat on
Twitter with #FirstinHuman.

All of the patients who come to the NIH Clinical Center participate in a clinical trial. Clinical trials look at new ways to prevent, detect, or treat disease. Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments. The goal of clinical trials is to determine if a new test or treatment works and is safe.
Patient Recruitment at the NIH Clinical Center
Call toll free: 1-866-999-5553 (TTY 1-866-411-1010)
Se habla espanol. Email prpl@mail.cc.nih.gov

Visit ClinicalTrials.gov
Visit Search the Studies

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Posted in Health

ADHD and Generic Medications

Posted on June 21, 2014 | 1 comment

I have heard conflicting information about generic medications in comparison with brands overall.
I once had a pharmacist argue with me that my generic was EXACTLY the same as the brand I was taking, it had to be all in my head if I felt different. I’m not a big fan of generics, however the price is right.
Although this article address specifically ADD and ADHD – I think it will be helpful to anyone who has ever wondered about the effectiveness of generic meds.

A Recap: Consumer’s Guide to Generic Concerta.